It has been too long! My last post was more than a year ago, written in Baltimore as we were only partway into my husband's chemo and radiation for throat cancer. Now, 15 months later, he is feeling healthy again, enjoying retirement, and appreciating NOT being in Baltimore at the mercy of the radiation and chemo teams. Their care was extraordinary, and we can now turn our attention to exploring our 'new normal'.
His is newer than mine... He is now retired, and busy putting the cottage and our main home to bed for the winter. Once that is done, it's time to figure out what will occupy his days while I spend the bulk of mine back in the studio. Writing is one option.
My new normal will involve keeping my mind on glass when I know there is someone retired down the street, who could play hooky with me at the drop of a hat. A quick jaunt to our favorite consignment shop or a drive to see the ocean are enough to distract me from the creative play I am now eager to enjoy. But we have both learned, it's all a balancing act.
I am back to teaching, which makes me so happy. I've missed the inspiration my students bring me, and the very act of preparing for a class keeps me on my toes. I have new venues to round out this year and begin the next, and a return to Penland School is planned for July.
As you can see in the photo, the birdhouses behind my studio are all vacant now, the kayaks and sailboats are put away, and it's a good time to turn that torch back on and warm up inside!
Saturday, November 5, 2011
Tuesday, July 6, 2010
How Life Changes...
A year ago today, July 5, 2009, family and friends were gathered at Union Chapel, Oak Bluffs, Massachusetts, on the Island of Martha's Vineyard, to celebrate the life of my late father, who died of Alzheimer's Disease at the age of 89.
And now, I'm in Baltimore with my wonderful husband, 30 years younger than Dad, as we fight the cancer that has put our lives on hold, scared the hell out of us, and demanded our full attention. We are well into the treatment that has been tailored for Ted by a team of doctors: three big doses of a trio of chemos, with a period of rest after each; this being followed by daily radiation - in the middle of which we find ourselves now.
There is nothing like the immediate rush of adrenaline one feels at the onset of such a diagnosis. Even before the diagnosis - the suspicions, the scans, the biopsies, second opinions - at each point the jack-in-the-box has been wound tight. Nerves are on edge, waiting for the phone call when the jack pops out, triggering another dose from the adrenal gland, another heart-pounding rush.
For now, those shots of adrenaline have subsided as we fall into a routine of daily treatment, weekly chemo, and periodic visits by other members of our supporting staff. I call it the cadence of cancer. Can you imagine? Patients and spouses all heading down to the cancer center like it's their day job, all used to phlebotomy, oncology, scanning their patients' cards, buying parking tickets at a discount. Like this is normal!
When we were coming to grips with Ted's diagnosis, all the little scenarios we equate with cancer - loss of hair, nausea, weight loss, fatigue, radiation burns and worse - all these flashed through my mind. I'm sure they flashed through Ted's too, although neither of us wanted to bring this unpleasantness up. Sort of like the elephant in the room - the side effects of cancer that were sure to come. Better not to dwell on them, though. Why borrow trouble before it appears? It only mars what could be a good day otherwise. So out of sight, out of mind. And when the hair began to fall out and the nausea came, we were able to handle it matter-of-factly. Maybe because you're 'eased' into these afflictions. They didn't appear full force after the first chemo (well, nausea began...). After the second, hair started to come out and Ted decided to have Todd give him a short cut. Less fuzz to notice when it did fall out. So you get used to what is happening gradually. Surprising to me. But what can you do about it. And there are so many people in the same boat... It's almost like a subculture. The cancer culture. So you just deal with it all and don't bemoan it. Set your jaw and plod through.
Along the way, even as the caregiver and not the patient, your sense of self changes subtly. One rarely notices the passage from one phase to the next in this life. Aside from giving birth, if you choose to, one usually isn't really aware of where he lands in the timeline of his life until he's smack in the middle of the next phase. I mean, didn't middle age creep up on us? And don't most of us in our 50's still think we're in middle age? Ahhh - but are we really? Nothing like cancer to remind you that AARP has relevance. That what was normal last year is hard to remember a year later.
I am feeling more introspective about everything as I deal with entering this next phase of life. I think about my parents (especially my mother) all the time. Trying to look with new eyes at their lives when they were the age I am now.
And Ted. I admire him so for what he is shouldering. I can't imagine how I'd behave if I had this fight going on in my own body. Giving myself up to be injured - burned - on a daily basis. I feel inadequate to help - unable to lift this burden of pain from him right now.
I try to memorize little scenarios when they occur - a visit to Baltimore Harbor for lunch before the first chemo, holding hands on a bad night until one of us falls asleep. The way the back of his head looks in his recliner, now that he has no hair - so young and soft.
I don't know why I'm inspired now to add something to this stale blog. Perhaps it's the irony of the date, or my need to record these conflicted feelings. Seeing them in black and white, reading them, might help me understand everything that's popping into my head these days. This was the result yesterday:
And now, I'm in Baltimore with my wonderful husband, 30 years younger than Dad, as we fight the cancer that has put our lives on hold, scared the hell out of us, and demanded our full attention. We are well into the treatment that has been tailored for Ted by a team of doctors: three big doses of a trio of chemos, with a period of rest after each; this being followed by daily radiation - in the middle of which we find ourselves now.
There is nothing like the immediate rush of adrenaline one feels at the onset of such a diagnosis. Even before the diagnosis - the suspicions, the scans, the biopsies, second opinions - at each point the jack-in-the-box has been wound tight. Nerves are on edge, waiting for the phone call when the jack pops out, triggering another dose from the adrenal gland, another heart-pounding rush.
For now, those shots of adrenaline have subsided as we fall into a routine of daily treatment, weekly chemo, and periodic visits by other members of our supporting staff. I call it the cadence of cancer. Can you imagine? Patients and spouses all heading down to the cancer center like it's their day job, all used to phlebotomy, oncology, scanning their patients' cards, buying parking tickets at a discount. Like this is normal!
When we were coming to grips with Ted's diagnosis, all the little scenarios we equate with cancer - loss of hair, nausea, weight loss, fatigue, radiation burns and worse - all these flashed through my mind. I'm sure they flashed through Ted's too, although neither of us wanted to bring this unpleasantness up. Sort of like the elephant in the room - the side effects of cancer that were sure to come. Better not to dwell on them, though. Why borrow trouble before it appears? It only mars what could be a good day otherwise. So out of sight, out of mind. And when the hair began to fall out and the nausea came, we were able to handle it matter-of-factly. Maybe because you're 'eased' into these afflictions. They didn't appear full force after the first chemo (well, nausea began...). After the second, hair started to come out and Ted decided to have Todd give him a short cut. Less fuzz to notice when it did fall out. So you get used to what is happening gradually. Surprising to me. But what can you do about it. And there are so many people in the same boat... It's almost like a subculture. The cancer culture. So you just deal with it all and don't bemoan it. Set your jaw and plod through.
Along the way, even as the caregiver and not the patient, your sense of self changes subtly. One rarely notices the passage from one phase to the next in this life. Aside from giving birth, if you choose to, one usually isn't really aware of where he lands in the timeline of his life until he's smack in the middle of the next phase. I mean, didn't middle age creep up on us? And don't most of us in our 50's still think we're in middle age? Ahhh - but are we really? Nothing like cancer to remind you that AARP has relevance. That what was normal last year is hard to remember a year later.
I am feeling more introspective about everything as I deal with entering this next phase of life. I think about my parents (especially my mother) all the time. Trying to look with new eyes at their lives when they were the age I am now.
And Ted. I admire him so for what he is shouldering. I can't imagine how I'd behave if I had this fight going on in my own body. Giving myself up to be injured - burned - on a daily basis. I feel inadequate to help - unable to lift this burden of pain from him right now.
I try to memorize little scenarios when they occur - a visit to Baltimore Harbor for lunch before the first chemo, holding hands on a bad night until one of us falls asleep. The way the back of his head looks in his recliner, now that he has no hair - so young and soft.
I don't know why I'm inspired now to add something to this stale blog. Perhaps it's the irony of the date, or my need to record these conflicted feelings. Seeing them in black and white, reading them, might help me understand everything that's popping into my head these days. This was the result yesterday:
Sitting in his Easy Chair
The back of his head - coiffed by cancer
Vulnerable, precious, kissable
I didn’t know his ears went quite like that…
Is this what his mother saw, reading Golden Books at 6?
Cancer pulls back curtains
Lays you bare.
Vulnerable, precious, kissable
I didn’t know his ears went quite like that…
Is this what his mother saw, reading Golden Books at 6?
Cancer pulls back curtains
Lays you bare.
Thursday, March 12, 2009
Tom Holland's Workshop
Wow! It's been awhile! But I've been busy - I finished up the Commemorative Beads for Bead and Button (more on that in another blog posting) then turned my attention to cleaning the studio for Tom Holland's visit. Here are some pictures:
This has been a wonderful first "Visiting Artist" experience! Tom was a terrific teacher and a fantastic guest. We had a chance to tool around Narragansett, eat "lobsta's" that Ted bought from a lobsterman right off the boat, and we had time to examine old beads and even visit the Sackler Museum at Harvard to see artwork from the Chinese Warring States period.
Tom demonstrated all sorts of stringer work, how to make folded beads, how to bend beads - our heads were about to burst by the time Sunday evening rolled around. My dear friend, Karen King, was able to come up from DC for this, so that was an added bonus. I'm looking forward to hosting more bead teachers in my studio - Jennifer Geldard being the next!
But now... time for taxes *sigh*
Friday, February 20, 2009
Signs of Spring
Spring can be very long in coming, here in New England, and by February I'm pining for open windows and bird songs. Any change for the positive in the view from the studio reminds me that I won't be sentenced to 365 days of below freezing temperatures. So yesterday, when I stood at the slider and looked at the river, the sign of receding ice was exciting! We've been deprived of our view of an animated river for several months now, and the static ice, with few waterfowl paying a visit, reminds me how lucky I am most of the year. It was fun yesterday to see the ice reduced to a thin covering that was moving to the south by several yards as the hours ticked by. The geese enjoyed taking turns floating in the water or roosting on the floe.
The birds are pairing up, too, a sure sign of spring to come! We've had a pair of swans down by our house, as well as the omnipresent geese, now finding their partners. By last night, we saw a double date out our back window:
After having a 2 1/2 week break from the studio, it's hard to get back into the rhythm of production, especially with the distractions out of the window. Maybe this familiar outdoor cycle will remind me that the spring shows are on their way and I can't be caught daydreaming much longer!!
The birds are pairing up, too, a sure sign of spring to come! We've had a pair of swans down by our house, as well as the omnipresent geese, now finding their partners. By last night, we saw a double date out our back window:
After having a 2 1/2 week break from the studio, it's hard to get back into the rhythm of production, especially with the distractions out of the window. Maybe this familiar outdoor cycle will remind me that the spring shows are on their way and I can't be caught daydreaming much longer!!
Monday, February 16, 2009
Sterling H. Ivison, Jr.
Six months ago, my dear father died. I don't think he had an enemy in the world, such a gracious, generous gentleman. For the 5 years he was living in Narragansett, slowly succumbing to Alzheimer's, I was his pal, his support, his protection, his medical advocate. We developed a daily rhythm. He was able to spend the night by himself, in his own home 5 doors up from us. I would show up early in the morning and help out with breakfast, then go to the studio downstairs to work on my beads, always with an ear open for what he might need upstairs.
Dad's house, like ours, is on the Narrow River in Narragansett. He loved to sit in the living room, the TV turned to the Weather Station, his eyes mostly turned towards the river. In the spring and fall, he would enjoy seeing the URI crew team row by his house (he was on the crew with MIT as an undergrad). Year 'round, he loved to watch the birds and squirrels feed on his back deck. If the weather wasn't too cold or rainy, Dad would venture out for a walk, twice a day. He was a sailor and a Naval officer, a lover of maps, directions. He never lost that bump of location and always found his way home from his neighborhood walks. In the morning, he would head out in one direction, in the afternoon, he would head out in the other. He was never gone long - maybe 15 minutes of fresh air. I always kept an ear out for his return up the front steps.
On days when the weather didn't cooperate, I'd pop a Lawrence Welk tape into the VCR. Dad loved the old music, and I could hear him tapping his feet in time with it, and sometimes even clapping along. It always raised his spirits (and mine!).
When Dad moved up from his Washington, DC, home of 44 years, he'd been living alone, a widower, for 6 years. He left old friends behind, but he had an instant family with Ted and me and the boys. Most dinners were down at our house, Dad making the walk down the hill in time to keep me company while I worked in the kitchen. I'd take him home when Ted washed the dishes and would get him ready for bed and tuck him in. Roles reversed, both of us fine with that.
Dad's last months were hard on both of us. Moved into assisted living when I could no longer cope, and then to a nursing home, Hospice helped him make a dignified exit. It was time, and he'd long said he had had a happy life and was ready for the next step. But no matter how natural this cycle of life and death is, it leaves a hole in the heart of the one who's left behind. I love you, Dad. I miss you.
Dad's house, like ours, is on the Narrow River in Narragansett. He loved to sit in the living room, the TV turned to the Weather Station, his eyes mostly turned towards the river. In the spring and fall, he would enjoy seeing the URI crew team row by his house (he was on the crew with MIT as an undergrad). Year 'round, he loved to watch the birds and squirrels feed on his back deck. If the weather wasn't too cold or rainy, Dad would venture out for a walk, twice a day. He was a sailor and a Naval officer, a lover of maps, directions. He never lost that bump of location and always found his way home from his neighborhood walks. In the morning, he would head out in one direction, in the afternoon, he would head out in the other. He was never gone long - maybe 15 minutes of fresh air. I always kept an ear out for his return up the front steps.
On days when the weather didn't cooperate, I'd pop a Lawrence Welk tape into the VCR. Dad loved the old music, and I could hear him tapping his feet in time with it, and sometimes even clapping along. It always raised his spirits (and mine!).
When Dad moved up from his Washington, DC, home of 44 years, he'd been living alone, a widower, for 6 years. He left old friends behind, but he had an instant family with Ted and me and the boys. Most dinners were down at our house, Dad making the walk down the hill in time to keep me company while I worked in the kitchen. I'd take him home when Ted washed the dishes and would get him ready for bed and tuck him in. Roles reversed, both of us fine with that.
Dad's last months were hard on both of us. Moved into assisted living when I could no longer cope, and then to a nursing home, Hospice helped him make a dignified exit. It was time, and he'd long said he had had a happy life and was ready for the next step. But no matter how natural this cycle of life and death is, it leaves a hole in the heart of the one who's left behind. I love you, Dad. I miss you.
Monday, February 9, 2009
February 9, 2009
So today I'm starting a blog that has a more public domain - perhaps easier to find than one on my website (www.katefowle.com). I've been behind the times when it's come to learning computer skills, but I do have thoughts I occasionally like to share with students, past and potential, and pictures that I collect on my teaching gigs or just outside my studio. So here goes! Some pictures of Tucson to start with...
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